障害学国際セミナー 2022
East Asia Disability Studies Forum 2022

• Information
• Overview
• Programme (overview)
• Program in Full

■Information 開催情報

TOPIC テーマ

Date and Time日時

プラットフォーム（Platform）

Organizers 主催者

Co-organizers 共催者

Languages 言語

Information Accessibility 情報保障

■Overview

There is a growing interest in independent living of persons with disabilities in the community in light of the infections of COVID-19 and deaths caused by it, particularly in congregate living arrangements. This is reflected in the on-going work of the UN Committee on the Rights of Persons with Disabilities on the “Living independently and being included in the community: Guidelines on deinstitutionalization of persons with disabilities, including in emergency situations”, expected to be finalized in 2022.

In East Asia as well, we have the challenges of implementation of article 19 of the Convention on the Rights of Persons with Disabilities, “Living independently and being included in the community”. One example is Japan, where more than half a million people are institutionalized in mental hospitals and residential institutions. In 2016, 19 persons with intellectual disabilities were knifed to death at a residential institution, that highlighted the issues of institutionalization. Some survivors, as a silver lining of this huge tragedy, have moved to the community with personal assistance.

Regarding article 19, China, Korea, and Taiwan (not a U.N. member but has domesticated the CRPD and organized its own international review) all received recommendations to promote the independent living of persons with disabilities in the community. This reflects the reality in East Asia, where both (a) issues of institutionalizations and (b) challenges of achieving independent living, meaning choice and control by persons with disabilities, need to be addressed.

This Forum explores the promotion of independent living of persons with disabilities in the community in the context of East Asia.

開催趣旨

新型コロナウイルス感染症の世界的流行は、特に集合的生活環境における感染拡大と、多くの入所者の死亡をもたらした。そのために改めて、障害者の地域での自立生活への国際的関心が高まっている。それは具体的には、障害者権利委員会によって現在進められている「脱施設化のガイドライン」策定作業（2022年に採択予定）にも示されている。

本セミナーが対象とする東アジアにおいても、障害者権利条約第19条が求める「障害者の地域での自立生活」実施の課題は引き続き大きい。たとえば約50万人の障害者が入院（多くが精神科病院）、入所している日本においても、2016年に19名の知的障害者が知的障害者入所施設で殺害された事件、そして一部の被害者のパーソナルアシスタンスの利用による地域生活への移行によって地域での自立生活の課題と可能性が示されている。

そして「自立した生活及び地域社会への包容」に関する障害者権利条約第19条に関して中国、韓国、台湾（国連加盟国ではないが、同条約を国内法化し、独自の国際審査を実施済み）全てに対して障害者の地域での自立生活の実現を促す勧告が出されている。それは入所や入院の問題だけでなく、在宅で家族に依存せざるを得ず、障害者が選択権と自己決定権を持つことを意味する自立生活が達成されていない東アジアの現状を示している。

本セミナーでは、多くの共通点を持つ東アジアにおける、病院や入所施設から地域での自立生活への移行の道筋を探る。

■Programme (overview) プログラム概要

DAY ONE： 26 February 2022／第1日：2022年2月26日土曜日
*Please note all the times are indicated for Seoul and Tokyo （すべて日本時間）

DAY TWO： 27 February 2022／第2日2022年2月27日（日曜日）
*Please note all the times are indicated for Seoul and Tokyo （すべて日本時間）

■Program in Full プログラム（詳細）

DAY ONE 26 February 2022　第1日2022年2月26日土曜日
*Please note all the times are indicated for Seoul and Tokyo （すべて日本時間）

9：30　Opening 開会

10:00　Keynote Address 1 基調講演１

11：00　Keynote Address 2 基調講演2

(photo of Tateiwa)

□Specialities: Sociology □Current Position:◇Professor, Graduate School of Core Ethics and Frontier Sciences, Ritsumeikan University (2004-), ◇Director of Research Center for Ars Vivendi at Ritsumeikan University (2007-2012,2014-) □Education:◇1983-1985 Graduate School of Sociology, The University of Tokyo (M.A., Sociology)◇1985-1990 Graduate School of Sociology, The University of Tokyo (All but dissertation)

http://www.arsvi.com/ts/e.htm#cv

12：00　Break 休憩

13：00　Session 1 : Independent Living Movement and Community-Living
  第1セッション: 自立生活運動と地域生活

(photo of Kim)

Kim Kyung-Mee, Ph.D., is professor in the Department of Social Welfare at Soongsil University in Seoul and the president of Korean Society for Disability Studies. Her career as an academician in the area of disability studies span over 30 years. Her research focuses on independent living, personal assistance services for people with disabilities, women with disabilities, disability discrimination law, diverse population with disabilities, aging with disabilities, and digital divide, future planning for people with intellectual and developmental disabilities, and self-direction.

(photo of Min)

Introduction: Min Lei, M.A. in Sociology, Ph.D. candidate at Wuhan University School of Law. Her research interests include sociology of law, human rights law, and children's rights. Her master's thesis is titled "The Influence of Significant Others on the College Education Expectation of Rural Left-behind Children", which analyzes the effects of parent-child connection, peer connection, teacher-student connection and resilience on the college education expectations of rural left-behind children through Amos model. She participated in the National Social Science Project and co-authored the article "Value Orientation and Practice Progression of Social Work Innovation and Development" in Learning and Practice (CSSCI) No. 10, 2018. 2018, the paper Task-centred Practice in Social Work won the first prize of the 10th China Social Work Student Forum and the 3rd MSW Graduate Student Forum.
简介：闵蕾，社会学硕士，武汉大学法学院博士研究生。研究方向为法社会学、人权法、儿童权利。硕士论文题目为《重要他人对农村留守儿童大学教育期望的影响路径研究》，通过Amos模型分析亲子联系、朋辈联系、师生联系和抗逆力对农村留守儿童大学教育期望的影响效果。参与国家社科项目并合作发表《社会工作创新发展的价值取向与实践进路》一文于《学习与实践》（CSSCI）2018年第10期。2018年，论文Task-centred Practice in Social Work获第十届中国社会工作大学生论坛暨第三届MSW研究生论坛一等奖。

“Reflection on the development and promotion of independent living in Taiwan under COVID-19 pandemic” ［Abstract］ ［摘要（中文）］
「新型コロナ禍における台湾の自立生活の発展と推進を振り返る」
透過新冠肺炎疫情反思自立生活在台灣發展與推動
［PPT］

Lin Chun-Chieh (President, Independent living Taiwan)
林君潔(台湾障がい者自立生活連盟理事長)
林君潔（社團法人台灣身心障礙者自立生活聯盟理事長）

(photo of Lin)

Lin Chun-Chieh had been denied for her education rights and lived in a medicalized institution for eight months when she was a child. Later, she received a law degree from National Taipei University, and then involved in independent living (IL) training of the Duskin Leadership Training Program in Japan in 2005. She was one of main founders of Taiwan IL Center and an activist of IL and PA availability for disabled people in Taiwan since 2006.

“Independent Living Movement and Deinstitutionalization Policy Issues” ［Abstract］ ［要旨］
「自立生活運動と脱施設化への政策転換の課題」
［PPT］ ［参考資料：日本語パワーポイント］

Onoue Koji (Vice-Chairperson of National Assembly of Disabled Peoples’ International/Advisor to the Cabinet Office on Policy for Persons with Disabilities)
尾上浩二 (DPI日本会議副議長、内閣府障害者施策アドバイザー)

(photo of Onoue)

I was born in Osaka in 1960. I have had cerebral palsy since I was a child, and after spending time at a special school and a residential institution, went on to a regular junior and senior high schools. I have been involved in the disability rights movement since I entered Osaka City University in 1978. I was involved in the campaign to enact the nation's first barrier-free ordinance in Osaka Prefecture, and then founded the Navi Center for Independent Living to support the independent living to support my peers. In the Diet (parliament), I made testimonies on the disability services legislation and the in 2005 and 2006, and on the CRPD ratification in 2013. I also served as the Secretary General of Japan National Assembly of Disabled Peoples' International (DPI Japan), and a member of the Council for the Promotion of Systemic Reform for Persons with Disabilities, and a member of the Disability Policy Committee. Currently, I am the Vice Chairperson of DPI Japan and an advisor to the Cabinet Office on policies for persons with disabilities.
1960 年大阪に生まれる。子どもの時から脳性マヒの障害があり、養護学校、施設で過ごした後、普通中学・高校へ進む。1978年大阪市立大学入学直後から障害者運動に関わり始める。全国初となった大阪府バリアフリー条例制定運動に携わった後、自立生活センター・ナビを立ち上げ仲間の自立生活支援を進める。2005、06年の国会で障害者自立支援法、2013年臨時国会で障害者権利条約批准に関する参考人として意見陳述。DPI日本会議事務局長、障害者制度改革推進会議委員、障害者政策委員会委員等を歴任。現在、DPI日本会議副議長、内閣府障害者施策アドバイザー。

Deinstitutionalization of persons with disabilities living in residential facilities and their independence in the community ［Abstract］
施設居住障害者の脱施設化と地域社会での自立
［PPT］

Jo Han-Jin (Professor, Department of Disability Studies, Daegu University)
曺漢鎭(大邱大学校大大学院障害学科・障害学硏究所/初代韓国障害学会会長)

(photo of Jo)

Jo Han-Jin, Ph.D., is professor in the Department of Disability Studies of Graduate School and director of the Institute for Disability Studies at Daegu University. He studied social work and disability studies at Soongsil University and University of Illinois. As a main founding member, he served as the first president of the Korean Society for Disability Studies.

15：00　Break 休憩

15：15　Session 2 : Family and Independent Living of Persons with Disabilities in the Community
  第2セッション：家族と障害者の地域での自立生活

(photo of Zhang)

Zhang Wanhong earned his Ph.D. in Law from Wuhan University School of Law, where he now holds the position of Professor of Jurisprudence. He is the Director of Wuhan University Public Interest and Development Law Institute. And he is one of the founders and the Executive Director of Wuhan University Institute for Human Rights Studies. He is the pioneer of disability rights studies and movement in China. He is the editor-in-chief of Disability Rights Studies in China.
法学博士，武汉大学法学院教授，博士生导师，兼任湖北省残疾人联合会副理事长，武汉大学人权研究院执行院长，武汉大学公益与发展法律研究中心主任，中国残疾人事业发展研究会权益保障专业委员会主任，湖北省残疾人事业发展研究会副会长。张万洪教授多年来积极进行残障领域的研究和倡导工作，承担多项国家级的残障研究课题，在残障领域著述颇丰，主编《残障权利研究》集刊。

(photo of Tsuchiya)

Tsuchiya Yo is a professor of Faculty of Letters, Aichi University. Tsuchiya holds a PhD in family sociology from Ochanomizu University. Her specialty is family sociology, with an interest in people with disabilities and family relationships. She is currently investigating the difficulty of living for women with disabilities.
専門は家族社会学。障害のある人と家族関係をテーマとしている。近年は障害のある女性の「生きづらさ」について調査研究を行っている。

(photo of Kim)

Kim Yong-Jin is lecturer in the Department of Special Education at Kangnam University. He studied special education at the Technical University of Dortmund in Germany, and has taught social work and special education at Kangnam university, Dankook university, and the Catholic University of Korea for many years.

(photo of Zheng Yang-Yi, wearing the traditional, national costume of Tao people.)

Zheng Yang-Yi is Assistant Professor in the General Education Center,　National Central University, Taiwan. He research interests include disability studies, ethnic group research, and community development.

(photo of Feng)

As a father of a girl with autistic disability, Feng Dong started to engage in the support work to other families with autistic disabilities since 2011. He was one of founders who established Ningbo Xingbao Family Support Center for Persons with Autistic Impairments. He joined the Inclusion Network of Parents Organizations since 2018 and became the committee executive director in 2021. He commits to promote the inclusive education and independent living in the communities for persons with intellectual and developmental disabilities.
2011年起开展自闭症群体的帮扶工作，发起并创立宁波市星宝自闭症家庭支援中心（简称“中心”）；2017年辞去公职，担任中心主任；2018年，加入“融合中国”家长组织网络；2019年，担任中心理事长；2021年，担任北京市晓更助残基金会“融合中国”项目管理委员会主任委员。

DAY TWO 27 February 2022　第2日2022年2月27日日曜日
*Please note all the times are indicated for Seoul and Tokyo （すべて日本時間）

10：00　Session 3 : Sexuality, Reproductive Rights and Independent Living
  セッション3：セクシャリティ・リプロダクティブライツと自立生活

(photo of Hung)

Hung Hsin-Ping got master degree at State University of New York at Buffalo for Sociology, then studied at National Chengchi University graduate Institute for Interdisciplinary Legal Studies. She is quite interested in long-term care services development, the Convention on the Rights of Persons with Disabilities (CRPD) studies, and People with Disabilities Rights advocacy. She has been working with several NPOs related to disability rights and gender equality since 2004. Now, she serves as Secretary General of The league For Persons With Disabilities Taiwan.

(photo of Kim)

Kim Won-Young is a writer, lawyer, and performer. He is currently a Ph.D candidate in law at Seoul National University College of Law. He has published several books (Becoming cyborg etc.) and research papers about law and disability, human rights, and performance art. He has also staged several theatrical and dance performances.

(photo of Matsubara)

Matsubara Yoko （松原洋子）is Vice President and Professor of the Graduate School of Core Ethics and Frontier Sciences at the Ritsumeikan University, Kyoto, Japan. She earned her Ph.D. from Ochanomizu University in 1998. Her research interests include the history of eugenics and the bioethics of reproductive technologies, as well as improving the accessibility of university libraries by digitizing books for students with print disabilities.
立命館大学副学長・立命館大学大学院先端総合学術研究科教授。1998年お茶の水女子大学大学院人間文化研究科修了。博士（学術）。主な研究テーマは、優生学の歴史および生殖技術の生命倫理。読書に障害をもつ学生の支援のため、図書のデジタル化による大学図書館のアクセシビリティ向上の研究にも取り組んだ。

(photo of Chen)

Chen Bo is currently an assistant professor at the Faculty of Law, Macau University of Science and Technology, and also an adjunct lecturer at the Centre for Disability Law and Policy, National University of Ireland Galway. Chen Bo holds a PhD in law from NUI Galway. Before that, he worked with a China-based public interest law institute that advocates for the rights of persons with mental health issues. His research interests include China’s mental health and capacity law, disability law, and the UN Convention on the Rights of Persons with Disabilities.
陈博，法学博士，澳门科技大学法学院助理教授，爱尔兰国立大学（高威）残障法律与政策研究中心兼职讲师。曾任职于倡导精神病人权利的公益法律机构。研究领域主要为精神卫生法、残障法律与政策、《联合国残疾人权利公约》。

(photo of Huang)

Huang Ya Wen graduated from Shih Chien University and got master degree at National Taipei University for Sociology. She is an experienced advocate of disability human rights and sex rights. Have been concentrating and working on related fields and campaigns for more than twenty years.　Now,　she is Interview volunteer for applicants Taiwan HandAngel,　and counselor and instructor of Shih Chien University Counseling Center.

(photo of Cheng)

Cheng Chihwei used to be a special education teacher. He is the co-founder for Taiwan Pride, the annual LGBTQ pride in Taiwan that was first held in 2003 and has become the largest gay pride event in East Asia. He advocates for an inclusive politics and invite the LGBTQ movement to work hand-in-hand with the disability movement in Taiwan. He introduced the sign language interpretation for 2009 Taiwan Pride in order to welcome sexual minorities from the deaf community. Cheng Chihwei also organized social events for LGBTQ with hearing impairment in 2010 that later turned into Taiwan Rainbow Sign Language Program.

12：00　Break 休憩

13：00　Session 4 : Persons with Psychosocial Disabilities and Living Independently in the Community
  第4セッション 精神障害者の地域での自立生活

(photo of Kawabata)

Miki Kawabata's research about the history of Medicine and Hygiene in Modern Japan. She is the author of "The Public Bath Movements in Modern Japan" (Hosei University Press, 2016). She was from Graduate School of Core Ethics and Frontier Science,Ritsumeikan University in 2011. She was a JSPS Research Fellow PD and a PD of the Kinugasa Research Organization of Ritsumeikan University, before the present post.
私は医学史・公衆衛生史について研究しています。2016年に、単著『近代日本の公衆浴場運動』（法政大学出版局、2016年）を刊行しました。2011年に立命館大学先端総合学術研究科を終了し、日本学術振興会特別研究員PD、立命館大学衣笠総合研究機構専門研究員などを経て、現在は生存学研究所で研究をすすめています。

(photo of Wang)

Wang Shou-Wu has been concerned about sex, drugs and crazy related issues for a long time, and currently lives in Tamsui with three cats.

(photo of Huang)

Huang Yi has devoted to legal-anthropology research, using interdisciplinary methods to explore the interactional relationship among universal human rights values, domestic social and cultural contexts, and the development of civil society in China. Her major research interests include International Human Rights Law, Equality and Discrimination, Legal Culture and Civil Society.
黄裔近年来主要进行法学人类学取向的研究，以法律研究结合质性研究（半结构式访谈、焦点小组、参与观察）为主要研究方法，从国际标准、本土法律文化及社群需求的多元维度探究国内法律、政策及福利制度的实践和改革。她的主要研究领域包括残障权利、平等与反歧视、《残疾人权利国际公约》在国内的实施效果的及残障社会组织发展的相关议题。

(photo of Lee)

Lee Kwan Hyeong is a writer, publisher, instructor, and journalist. Having had schizophrenia since 2003, he has been working as an instructor and journalist about disability issues. He currently studies disability at Daegu University as a Ph.D. student. His stories based on his personal experience and theoretical perspective resonates deeply with his audiences.

(photo of Kirihara)

Doctor of philosophy. Running committee of Japan national group of mentally disabled people from 2006. A sole witness with psychosocial disabilities who participated in the deliberation of the Committee on Health, Labour and Welfare at the 193rd ordinary session of the Japanese Diet in 2017. Author of “From the Utsunomiya Hospital Scandal in 1984 to the Revision of the Mental Health Act in 1987: Examining the Relationship between the Accepted History and the Original Intention of the Whistle-blower and His Supporters (Core Ethics volume 11 in 2015),” and many other articles.
博士（学術）。2006年から全国「精神病」者集団・運営委員。2017年に第193回通常国会参議院厚生労働委員会において当事者で唯一の参考人を務めた。論文として「宇都宮病院事件から精神衛生法改正までの歴史の再検討――告発者及びその協力者の意図との関係」（Core Ethics 11、2015年）ほか多数。

15：00　Break 休憩

15：15　Roundtable: East Asia and Living Independently in the Community
  ラウンドテーブル：東アジアにおける障害者の地域における自立生活

(photo of Otani)

• Contracted polio in 1960 at the age of 9 months, condition became more severe in 2012 when both legs were broken.
• Has been involved in establishing bioethics education in high schools since the mid-1980s.
• 2004-2007 Senior specialist for curriculum, Elementary and Secondary Education Bureau, MEXT (Ministry of Education, Culture, Sports, Science and Technology)
• 2004-2007 Part-time lecturer on bioethics, Chiba Institute of Science
• 2006 Completed Ph.D., Research topics: bioethics and bioethics education, the history of euthanasia/death with dignity

(photo of Chang)

(photo of Chang)

Chang Heng-hao is a professor from the Department of Sociology, National Taipei University, Taiwan. He received his PhD in Sociology from University of Hawaii, Manoa. He is currently the president of the Taiwan Society for Disability Studies. His research interests include disability rights movement, representation of disabilities, and inclusive education. He currently serves on the editorial board of the Bulletin of Special Education and International Journal of Disability and Social Justice. His current research projects include vernacularization of CRPD in Taiwan and comparative studies on the indigenous disabled people in Australia and Taiwan.

16：15　Closing

Closing Address　閉会挨拶

Moderator for two days　総合司会

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